This has been a constant refrain running through my head for
the past two months. It wasn’t a mantra;
it came unbidden and ran on like a record stuck in a groove. But even in the depths of despair when it was
spoken more like a pleading question than a statement, it has been there.
Your life can change at any time. Suffering is a part of reality. Illness doesn’t care what you have been
through or how old you are. These are
lessons, but they are not THE lesson.
When you are in the cave you will never find the lesson. You
will spend your time looking for the REASON, the thing you did that caused all
of this badness to happen. Or
predicting the future – a future where the badness has gotten worse and your
entire life is the cave. Over the past
two months, I have made frequent visits to the cave. But not all of my time has been spent
there.
There is this. A and
I are lying in bed, the way we have spent much of her time in the
hospital. Her arms snake around my neck,
her head rests on my chest, and she falls asleep. I realize that she has never held me in
exactly this way and feel that in this moment, she KNOWS. That I love her. That I would do anything to keep her safe. I would trade this moment in return for her
good health, but that choice isn’t mine.
So I let it wash over me – the knowledge that we have crossed a
threshold and there is no turning back.
And I fall asleep too.
There is this. A
package arrives to the hospital, sent by a group of Sue’s touchstone friends. It contains a seemingly random assortment of
gifts – a bracelet, a stuffed animal, a plant, a Magic 8 Ball. A loves them all, but is particularly drawn
to the oversized whoopee cushion. Soon
one of A’s favorite nursing assistants is helping to facilitate a game where A
leads someone in to sit on the hidden cushion and they feign embarrassment as
the room explodes in the sounds of farting and laughter. I realize that this moment is made possible
not only by A’s spirit, but also by everyone’s willingness to play along. And A is smiling – a true, deep smile the
like of which I haven’t seen in days.
There is this. A
young woman comes into our room to sit with the patient on the other side, and
A seems inexplicably energized. “Hey,
where are you from?” she asks. “I’m from
Africa.” The woman replies with a grin.
From that moment, A doesn’t want to leave her side, this young woman
from Ghana whose name is Janice. So we
all play together – A, Janice, our roommate and I. And if only for this brief moment where our
lives are intertwined, I love Janice.
For her beautiful, warm smile.
For being from Africa. And for
understanding that these both mattered to my daughter.
And there is this. We
are home, and A asks if we can eat dinner as a family. Soon we are all around
the worn wooden table. Me. The woman who is my model and inspiration for
how to love. The boy who is far on to
being a better man that I can ever hope to be.
And the little girl who has revealed herself as the missing piece we
didn’t know was missing. There is no
talk of illness, or hospitals, or symptoms.
Just laughing and teasing and eating.
Just us. And that is more than
enough.
They say that God is love, and I have never had difficulty
in believing it. I don’t understand suffering, and the suffering of my child
has pushed my faith to the edge. But even this suffering doesn’t give lie to the
truth that life is full of unexplained, overwhelming beauty. A God that is love is the only kind of God
that makes any sense to me. But even
this isn’t the lesson. I think the lesson is found by speaking the
statement in reverse.
Love is God. It heals,
it soothes, it pulls you from the darkness and makes you new. I can search
for reason and make predictions, though neither is likely to bring comfort to
anyone. Or I can Love. I can look for
Love. I can be open to receiving
Love. Most importantly, I can create Love. And people do, every day. They give in to laughter, forge the bonds of
kindred spirits, and revel in the simple, unique beauty of others. They throw their arms around each other and
communicate in words spoken and unspoken.
You matter. You are beautiful. And I would do anything to keep you
safe. Because somewhere along the way
we crossed over the threshold into Love.
And there is no turning back.
Love is God. And Love
can be everywhere, if we choose to create it.
This is the lesson. The only
question that remains is if I can not only learn it, but also live it.
Holy shit. Keep writing baby, you are amazing. I love you.
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